Searchable abstracts of presentations at key conferences in endocrinology

ea0089p7 | Population Science | NANETS2022

Feasibility of e-NET: A Web-Based Health Platform to Investigate Quality of Life in Patients with Neuroendocrine Tumors

Mulvey Claire K. , Steiding Paige , Moon Farhana , Paciorek Alan , Zhang Li , Bergsland Emily K.

Background: Patients with neuroendocrine neoplasms (NENs) have chronic symptoms from hormone overproduction, tumor growth and metastasis, and side effects from prolonged treatment. We assessed the feasibility of using a digital health platform to recruit patients with NENs to evaluate symptoms and quality of life.Methods: eNET is a prospective, web-based, cohort study for patients with advanced NENs of any primary site, histologic grade, differentiation,...

ea0098p10 | Population Science | NANETS2023

Quality of life differs by age and sex for participants with advanced neuroendocrine neoplasms in the eNET study

Mulvey Claire K. , Paciorek Alan , Steiding Paige , Moon Farhana , Zhang Li , Bergsland Emily K.

Background: Patients with neuroendocrine neoplasms (NENs) have a high burden of chronic symptoms. We assessed symptom burden and overall quality of life (QOL) for eNET study participants and analyzed differences by age, sex, and NEN primary site.Methods: eNET is a prospective, cohort study on the Eureka digital health platform enrolling individuals with advanced NENs. Participants completed validated surveys on an internet-supported device at baseline an...